–I should probably devote a whole post to a health update, since so much has been going on, but to sum up: I started the injections last week, and after a day of feeling like absolute shit (very normal after giving yourself five injections in the stomach of a medicine designed to kill off your immune system), I bounced back and had a taste of The Good Life: I went swimming. I cleaned my house. I had a girl’s night out. It was amazing. I’ve been seeing some improvement on Humira already. The Perfect Day was an anomaly (I’m actually having a challenging time of it today) but I’m hoping it’s a taste of things to come. I’ve only just started my treatment, and it’s exciting.
–This time I’m using the pen injector instead of the syringe, and I’ve decided it’s like the worst hypospray ever.
–At the urging of Stef, and after repeated listens to the RandomTrek podcast, I decided to give Voyager another shot. I am into it. Like, way into it. I have brought shame to my family. I’m relishing it, and every time it’s on it’s like StarTrekStarTrekBRANDNEWStarTrekStarTrek. It has its (many) flaws and (glaring) WTF moments, but it’s Star Trek, based on the universe I know and love, and full of unseen surprises, and that is a rare and precious thing for me as I’ve nearly memorized TNG, have seen DS9 more times than I can count, and have watched through Enterprise about three and a half times. When I’m done with Voyager I’m going to watch TOS. Isobel is not fond of it, preferring “all the other Star Treks,” and last night when I put it on she said, “All shows are entertaining to me, except for Voyager,” which is a boldface lie but sums up her irritation with it. To that I say, in her words, TOO BAD, CHARLIE! Mama’s gotta watch her space stories.
–It’s been so nice this week, weather-wise, that I am distraught over the forecast of 111F next week. My Summer Schedule has relied on getting the kids outside as soon as possible in the day for their outside play, but I’m thinking of planning the Central Valley version of Snow Days–Heat Days–where I find indoor activities to do inside all day.
–A side effect of having a son means you accidentally refer to grown men as “buddy” on occasion
–Elias ripped another necklace right off my neck. Heroically, I did not kill him. I think his necklace kill score is at seven. Related: I have decided to learn jewelry repair.
–I was lucky enough to win an IG giveaway from Eli of Thrift Eye, and it was the best prize ever: books! Lots of them! Plus this special one, that, regardless of spelling, I pronounced like my daughter’s name.
–Thank you to all of you who have supported A Breath of Fresh Air for Stef. It means so much to me to see the names of people I know and love from twitter and this blog support someone I love so dearly. Words can’t express my gratitude.
–As a side effect of almost five months on steroids, I’d gained enough weight that I had to buy new pants, which lead to me unfortunately traversing the hellscape that is Old Navy on the weekend. I mention this because it’s another strange dimension of an invisible illness: one can be ill and malnourished with a digestive disease, and not be terribly skinny or underweight. Throughout my illness I’m constantly teetering between overweight and underweight (but overall only slightly; in my case it’s been by degrees), but I’m not necessarily at my best when I’m heavier. And no matter what vitamin and nutrition absorption is still an issue. A better marker for health is if I can grow long fingernails. It’s been awhile.
–Anthony and I have never been prouder than when Isobel loudly announced I AM NEVER VOTING FOR THUMP!
–I had one awkward adventure with my cane, which is unfortunate, but I can shake it off. Funnily enough, something I didn’t anticipate was how much my kids would love it. I often find it in their bedrooms when it’s not in use or hanging in its spot by the door. It’s a cane, sure, but also a sword, and oar, a magic staff, a witch’s broom. One day Elias slept in late and Isobel and I heard him coming down the hall with it, click click click, and we busted up laughing.
A Twitter bot is beating Trump fans. “The bot tends to get pretty inflammatory and makes no sense, which I think clearly speaks to the kind of person who supports Trump.”
Sorry I am not cool. I need to wear this sign around my neck.
I just read this whole book all the way through so let me save you a couple hours. That’s basically how I feel about KonMari.
#StarTrekVR: Bridge Crew will let you and your friends live out the dream of helming a Starfleet spaceship. This is basically VR Artemis and I am so excited!
17 Faceswaps Gone Uncomfortably Wrong. Some of my favorite face swaps are on here, minus the one that swapped a girl’s face for her dog’s peenus. Crying laughing at these.
By request: this is how you say ‘Mj?llnir’ (in reconstructed Old Norse, not Modern Icelandic, pronunciation). Gratifying to know I’ve been pronouncing it correctly. My ancestors would be proud.
Multnomah County Library will waive over $600,000 in fines, end late charges for kids. Again, with my heart.
Sometimes we look at dog rescue sites. Tonight we found this dachshund/house-elf mix. Please give him clothes!
My laptop is set up to take a picture after 3 incorrect password attempts. You are being hacked!
10kgs of 2,000-year-old butter found in a bog in Ireland to go on display. I want to witness this miracle.
Amazon unveils new six-button user-generated review interface. Dog eating a lemon gets me.
Please join me in supporting A Breath of Fresh Air For Stef. Our dear friend Stefanie has been diagnosed with two rare diseases that have drastically changed the way she lives her life. Simple tasks most of us take for granted, like breathing, standing, and sleeping, are extremely difficult for her. She has recently qualified for a Bipap machine, which helps her lungs with the basic function of inhaling and exhaling. This machine is extremely expensive, and although her insurance thankfully helps, she still has a steep copay of a hundred dollars a month. And while being sick is a full time job, the pay is terrible. We’d like to raise $1,200–enough to cover their copay of the machine for one year. Stef has always been there for us, now it’s our turn to be there for her.
Scrapbook: Pumpkin Patch. What a little pixie she was!
Healthy Thanksgiving Snacks and Appetizers. Healthy snacking.