–To my horror, last week I had to clean up a segment of wing feathers (with flesh still attached, dear god) and a literal bird’s heart in the living room. Then I had to search the house for more bird remains in what felt like the grossest scavenger hunt ever. That morning, Anthony had left our back door open, just a sliver, to let in what cool air the early morning held and to let our cats go in and out for breakfast. We can’t pin down the culprit for sure, but experience has taught us to blame Jupiter, King of Small Animal Murder, who treats our house like a safety deposit box for his various horrors. Longtime Little Big readers might remember his usual habit of bringing home our neighbor’s Barbie dolls, filling a young baby Isobel with gratitude and delight. After she discovered this particular round of carnage, she looked at me and said, “Why is Jupey bringing us dead birds? I liked it better when he brought us toys.” Everyone does, sweetie, I said, gagging. Everyone does.
–In Fucking Finally news, my injections were finally signed and submitted and approved by everyone they needed signatures, submissions, and approval from, and are currently on their way to me. As of this writing, they should arrive Tuesday evening. It’s been nine weeks to the day since they were ordered, and nine long weeks without treatment. It could take awhile for the effects of the medicine to be seen, so I’m trying to stay patient. I give myself four injections the first day, then two a week later, then two more a week later, then one every other week. This ramps up my shot schedule quite a bit from what it was on with Cimzia, as that was only once every four weeks, but I’m willing to do whatever it takes to be healthy.
–Isobel has taken over my Miitomo game and uses it to create outfits, write “hilarious” captions for them, and play Miitomo games, but eventually she strayed from her designated area and found the question and answer section, where I made some very disparaging remarks about Little Einsteins and even used a swear. Isobel was appalled, and I had to explain it away by saying that comment was left by a rando on the internet and as such it was for adults only and off limits for kids. Then I had to swear my undying fealty to Little Einsteins forever and ever. Crisis averted. I do love watching her play the game as she’s given me some very creative outfits and relishes coming up with witty captions. She likes to design specific fashion combos for very specific occasions. She’ll scroll through them and explain each to me: “This is your ‘Going to Work’ outfit, this is when you feel like you need space, this is for when you are the Queen of Fruit.”
–I’ve been struggling emotionally ever since I read some of the Snapshot posts I wrote a year ago when they popped up in my Timehop. I started my Cimzia injections (the treatment I’ve been on that has failed to work) last year on June 17th. All of my updates read the same as now: I am exhausted, I am sick, I am not able to function. I was going to write about how many spoons I have now that I don’t have to worry about school drop off and pick up, when I found I had written the exact same sentence last year. It is disheartening to think that this is still happening a year later, and that this new round of injections might be as ineffective as the last, which is such an utterly depressing thought I can hardly stand it. I’m just trying to focus on what I can do, not what I can’t, the paths I have available to me, what I need to get done, and the things that bring me joy. It’s all I can do. Hope is the gift you give yourself, and I’m clinging to it.
–I really love vintage men’s ties. I think I’m going to have to learn how to tie them and find a way to style them because there are just so many wonderful ties out there that I want to wear. I’ve bought a ton for Anthony, who is ready and able to rock them, but I want to get in on that tie action, too.
–Speaking of wearing what you love, Elias insists on wearing Isobel’s purple shirt with pink stars whenever it is clean (and tries to even on days when it’s not). He loves his big sister and wants to be just like her. I recently gave him a not-entirely successful haircut, so sometimes when he’s in this outfit he’s mistaken for my lovely daughter with a pixie cut.
–Now that we are officially in summer break and the kids are together all the time, Isobel has begun to get a bit irritated by her brother’s constant presence. She made up a lovely song for him to the tune of the alphabet that goes “A-B-C-D-E-F-G BROTHER PLEASE STOP BOTHERING ME.”
–Tuesday is the CA primary election, and I encourage everyone to get out and vote! Vote vote vote vote! Even if we don’t agree politically, this is your voice, your chance, your shot; vote!
–While watching Anthony play through a particularly tough boss in a video game, Isobel sighed when Anthony’s character died again, and said, with much gravity, “I would rather do homework than watch Daddy continue to fail at this Spider-Man game. Let’s play Skyrim.” She loves Skyrim, and this time through the two of them have made it their combined mission to build a giant house and adopt every available orphan in the game.
–I’ve got tons of great art for sale in my Society6 shop! Check it out and support a me!
Obama gives him something to be jealous about. God, love him.
It’s like they took the transcript of an exhausted parent answering the questions of an aggravated preteen & made it into a formal document. This thread about the USPS postal rules is so freaking hilarious. Via Dolly
Frog and Toad: An Amphibious Celebration of Same-Sex Love. I love those stories even more now.
A Teen With Crohn’s Disease Posted Selfies With Her Ostomy Bag And Surgical Scars. A beautiful woman triumphs over ugly disease.
NOT A DRILL. The artist behind the Sweet Valley High covers TAKES COMMISSIONS! OMG I want one so bad!
Is Donald Trump’s hair a $60,000 weave? This article deserves a Pulitzer. His hair is a trainwreck and I can’t look away.
June is Myasthenia Gravis awareness month. Myasthenia Gravis sounds like an awesome Harry Potter spell, but the truth is much less awesome. This terrible disease interrupts the signals from the brain to the muscles, resulting in paralysis and other problems. One of my best friends suffers from the little-known but terrible disease, and I hope that by increasing awareness we can increase compassion and understanding for a devastating invisible illness.
Thrift Haul 10.06.15. The details of a good score.
The Best Craft Supplies To Look For While Thrifting. You can’t go wrong with these.