–I’m still struggling mightily with my health, which is why once again I’m late with this update. Earlier this week I officially took my last dose of steroids and although I’m terrified and depressed as hell my life will go back to the way it was, I’m relieved some of the side effects are over. There’s a lot I want to say about my health at this point, almost so much I just want to give up and not say anything. I feel like I’m constantly straddling that line between expressing myself and complaining too much. My life feels ridiculous. It’s ridiculous to do the bare minimum and be so tired you can’t stay awake. It’s ridiculous to be exhausted by simply sitting around. It’s ridiculous to never know if the day is going to turn around or if you should just accept that there’s no more life to be squeezed out of a day. It was better on steroids. The headaches, the insomnia, the nightly rage dreams were worth it, but they are a dangerous drug. There’s so much I want to say. I’m not sure I have the energy to say it.
–Isobel doesn’t always employ bedtime delay tactics, but when she does, they are a doozy. Last week she spent maybe twenty minutes crying because her great-great-grandparents are dead and she never got to meet them. Honey, I was only lucky enough to meet one of them. This happened while I was on solo bedtime parenting duty, of course.
–Last weekend I was well enough, just barely, to attend two birthday parties, one for my dear friend Melynda and the other for my nephew, who turned two. They consisted of me sitting around for the entire time, and it was exhausting, but I did it. Sunday I felt well enough to manage three sips of wine–something my combined pregnancy and Crohn’s-situation has denied me for over a year. I knew I’d be getting off the steroid soon and thought it was now or never. Those sips were glorious. From the whole 14-day run of steroids I think I had maybe three really good days and a couple of half-good days here and there.
–Next week is Isobel’s last week of Kindergarten. She’s changed so much in such a short time. We’re going to have the whole summer together and I’m going to try to keep some sort of loose schedule with workbooks, activities, and unstructured time so that she doesn’t fall behind and we stay busy. I’ve been calling it “Mimi School,” as she calls me Mimi and she’s thinking of me as her summer teacher. She has decided that while I put her through Mimi School she’s going to put Elias through “Isi School,” and she has already been having fun thinking of baby games and activities for him.
–One of the things I promised my mom for Mother’s Day was that I would finally get my act together in time and enter some photography in the fair. She’s bugged me about this for years but the deadline always snuck past me. After Isobel saw what was going on she announced that she wanted to enter stuff in the fair, too, so she could “win a ribbon.” Our fair has a Lego category where kids can submit anything they want made out of Lego, so she made a floating island store. Everyone who enters something in the fair gets a free ticket, so our goal is to get the whole family in for free. We were trying to think of what Anthony could submit and we decided he’d do a place setting treatment. If you aren’t familiar, you can set a dining table for four and your theme, tablecloth, dishes, floral arrangements–the whole shebang–will be judged as part of the Home Arts category. Anthony decided he’s going to set a D&D-themed dinner table. Obviously, I think he is going to “win the ribbon.”
–I lost our wireless mouse for about an hour and a half the other day. It was totally my fault. I needed a moment to type an email unfettered by baby hands so I gave Elias the mouse to examine. I became distracted and then when I needed the mouse again I realized it was gone. I looked all over for that dang thing, and besides it being annoying it was ridiculous. I could imagine the conversation I’d have with Anthony. He’d be like, “What happened to our wireless mouse?” And I’d be like, “LOL I gave it to a baby.” I did eventually find it in our (thankfully, empty) bathtub. Moral of the story: don’t give your mouse to a baby. I think there’s a fable about that.
Follow Friday: Al Fresco. The great outdoors and even greater tweets.
Snapshot 05.13.15. Quite a few people are going to need to be arrested.
Follow Friday: Zozo. The best tweets, and as Isobel says, “We are so lucky to have the biggest cat in the world.”
Nine Things To Say To Someone With A Chronic Illness. This is a brilliant post by Stefanie.
I went on a flight that had a chat room all passengers could use, after choosing a nickname. I chose “Pilot.” Kickin’ it with my p_gers.
My daughter wanted Black Widow. There are none. Made one. You are my hero.
My sister goes to a catholic school and the teachers made them do a dance to uptown funk but with religious lyrics. The full and entire argument for why we need separation between church and state.
Holy shit, this sci-fi camp for girls from low-income Brooklyn neighborhoods looks like an AMAZING project. Octavia Butler was one of my favorite authors of all time.
“You cannot fake it. Faking is very tiring. I truly, truly enjoy what I do.” Everything I’ve ever heard about Martin makes me think he’s a just a fantastic guy.
BIRD LIBRARY. My new fave account.
This will never not be funny to me. I ship it.
PIKACHU RAMEN. I cannot let Isobel know of its existence unless I have access to an unlimited supply.
A motor protein linking a vesicle to a microtubule to help it travel to & from the plasma membrane inside of a cell. I can’t stop watching this.
If the ‘Star Wars’ trailer was remade with crappy clip art. In this new trailer, Darth Vader is replaced by an illustrated jack-o-lantern in a helmet. R2-D2 becomes a trash can. And Chewbacca is now a bear armed with a bow and arrow. Via librarian_kate
Guilt Cakes. I’ve posted a similar link to Kristin’s, my twitter wife’s, amazing goodbye cakes to her pages before, but LJ picked it up and also it’s worth sharing a million times.
Completely love the name of what I assume is the local supermarket chain’s own-brand version of Dr. Pepper. I love love love generic copycat soda names.
Completely Unusual Stock Photos. Who wants to laugh till they cry?
“If you treat your sketchbook like a playground, it will turn into a treasure map.” We’ve already given Isobel a few sketchbooks of her own. I can’t wait until she really gets into them.
There’s a story behind every sign and I love to know the story behind this one. Not as great as the sign about the Cheez-it incident, but still great.
Amazing Wasp cosplay. Isobel loves dressing up so much that I wonder if she will be into cosplay when she’s older.
This procedure can be repeated indefinitely as needed. Very helpful.
Scrapbook: Girls’ Day Community Sale. Someone tried to sell Isobel a creepy clown poster.
Recipe: Sesame Peanut Noodles with Chicken and Vegetables. Great as a vegetarian dish, too.
Thrifty Giving: Spring Housewarming Gifts. Mid Cent Mod goodness and more.
Scrapbook: Summer Winter Backyard. I feel hugely pregnant again just looking at these photos.