–I’m not as well as I hoped I’d be. I’m able to eat with more stability but the arthritis pain and exhaustion has been severe. My feet burn and ache from the tips of my toes all the way into my hip sockets. Walking is agony and the slightest touch blisters with pain. Even at rest, they burn. I’m trying to stay off my feet as much as possible as I feasibly can with two young kids around. As hard as it is to be ill and be their primary care giver while managing a severe illness, part of me wonders if they are keeping me going, giving me reason to hold my head above water when otherwise I might let it sink.
–I am seeing some improvements, however small. Anthony and I had the good fortune of securing the inlaws for a few hours of babysitting this weekend so we could have a lunch and movie date. It was basically me sitting down in places other than in my home for a few hours and even that exhausted me. Leaving the house is a victory.
–Let’s talk about happy stuff! Isobel is very keen on a “Crafts for Earth” campaign she made up. What started as a craft project/obsession with our mop packaging has turned to taking whatever garbage scraps I don’t dispose of quickly enough into supplies for art. Reusing our waste “saves the Earth”, which she tells me several times a week. Which is fantastic and I’m glad the reusing seeds I’ve planted have already started to bear fruit, but this also means that throwing anything away (even to the recycling bin! where recycling goes! to get recycled!) may be punished by an existential meltdown. Because obviously I can’t be her mother when I’m clearly Duke Nukem, planet destroyer. She has gone so far as to bring home plastic bags from play dates with family filled with someone else’s garbage. In an attempt to control the mess (which is turning into my life’s work at this point) I have designated a large gift bag that she may stuff with as much reusable paper and plastic as she can for art projects and anything that doesn’t fit gets tossed in our recycle bin at school. It was frustrating until one day she said to me, “My way of saving the Earth is with paper, scissors, and glue.” And suddenly it was all okay.
–Isobel has lost a second tooth! I can’t believe how quickly this is happening! My mother in law Olivia works at a school and brought home a pink tooth-shaped carrier that they give to students who lose their teeth at school for safe keeping. Isobel is in love with it and requested she keep the tooth in the tooth carrier in the bathroom instead of having the tooth fairy take it away. Which is fine, the tooth fairy doesn’t care, because I’m not sure what I’d do with a tooth collection anyway seeing as how I don’t know any magical spells or work at a museum. We gave her a dollar for her first tooth because it was her first, but I’m really curious to find out what the standard tooth fairy gift is these days. My Dad gave us fifty cent pieces or sometimes two dollar bills, but then we felt like they were too special to spend. I’m really curious about what other tooth fairies have to say about this. Also I feel like America has found a new way to make me uncomfortable about how much I should tip.
–Isobel and I continue to rule Goat Simulator on a daily basis. It’s the only game where I can pull off fancier tricks than Anthony (though given time he’d crush me). It’s been so fun for both of us to do together, and we are really bonding over the adventures of Joonifer and Francoise. It’s helping her hand-eye coordination, too, which is something that has developed more slowly with her–a trait she’s inherited from me. I’m improving right along with her, and she is fantastic about discovering new things on her own. We’ve also watched a few videos people have made of GS (some of them are highly swear-filled, so beware) to learn how to do certain things, and now she really wants to make a video of her playing GS to share with others. “I want to share my goat coolness with all the people, Mama.”
— Taking a weaning dose of steroids can be tricky, so here’s my low-tech method of keeping track of what day I’m on in the pill rotation.
–Now that I am beginning to eat normal food on a more regular basis, I’m going to start writing Little Big Kitchen posts again. Woohoo! There is nothing more depressing than writing about food when you can’t eat it, so although I haven’t stopped cooking and occasionally, eating, I haven’t had the heart, or the stomach, to write about it.
–Last Friday Isobel woke up and found Anthony already awake making breakfast with a friend who crashed here for the night. Isobel became excited and ordered Dada to make pancakes and I had to let her down that it was Friday, and not Saturday, and that she still had to get ready for school. Then she said something for the first and probably not the last time: “I thought today was Saturday! THIS IS HORRIBLE!” Welcome to life, kid. A few weeks earlier on a Sunday she said to us, “Tomorrow is Monday, a day of great shame.” She’s becoming a jaded teenager so quickly!
–Elias is getting teeth as rapidly as Isobel is losing them. This sometimes turns him into a cranky demon-possessed baby but I love him so hard I don’t care. He is just the best little Buddha-bellied, curly-haired, Hobbit Betazoid baby ever.
–I have gotten the most lovely emails from many of you lately, reaching out hands to help and comfort and commiserate. Thank you. This means more to me than you could ever know! I am doing the best I can to reply in a timely matter, because each one of them lifts me up.
Heaven, Bring Your Hammer Down On Me. A prayer, a plea, a wish.
Thrifty Giving: Darth Vader Mask. Luke, it is your birthday.
Scrapbook: Your Second Child. Love is an exponent.
Follow Friday: Poppies, Orange & Pink. My love letter to you. Plus, poppies.
At Least I’m Beautiful On The Outside: Health Update. I am all kinds of gross inside.
Snapshot 04.28.15. I did not divorce him right there, but I was sorely tempted.
Follow Friday: Hanami in Black & White. Blossoms and words.
‘Empathy Cards’ by Emily McDowell. For the perfect thing to say to someone with a devastating illness. A few people sent this my way (thank you!) but I saw this via Stef first. As you can imagine, I adore them.
What Type Of Swimsuit Should You Wear For Your Body Shape This Summer? Everyone needs to read this k thanks.
The 48 funniest women on Twitter according to some of the funniest women on Twitter. I love all these ladies. Someday I’d like to be one of them.
Man punches bear to save his Chihuahua. “This big right hand has sent a lot of people to the floor,” says 73-year-old badass. This happened a few hours away from where I live, in my Aunt’s backyard, in fact. Via saladinahmed
How lions teach their young. Squee, I tell you.
I see what you did there. And down there.I cackled.
“Evolve, men, evolve as fast as you can!” A for effort.
A defense of the oxford comma. It is now my favorite piece of writing. One of the better defenses I’ve seen! (I’m pro-Oxford comma, but not rabidly so.)
Snapshot 02.19.14: Such pregnant, wow grumpy.
Little Big Kitchen: Picnic in Daisy Park. Three hungry girls, a grown man, and a pregnant lady have a picnic in a park filled with daisies.
Scrapbook: The Waterpark. I remember how hot it was, how discouraged we were when we arrived, how happy we were when we left.
Productivity Creepin’: Favorite Road Trip Apps. Peek inside my app folder.
Thrifty Summer Fun for Kids & Their Adults. Can’t wait to update this with baby fun, too.