Yesterday I had my post-colonoscopy and biopsy follow up appointment with my GI specialist. The results are in: I am not beautiful on the inside. It’s actually pretty gross in there.
The nurses that greeted me in my post-colonic haze told Anthony and I that I was riddled with abscesses, a fact that, as it turns out, was patently false. We didn’t question that information at the time because 1. they offered this information freely, 2. we didn’t get a chance to visit with the doctor that day, 3. abscesses are a very common complication in Crohn’s patients, occurring in about 50%, and 4. they are butt nurses who do this for a living. This caused more than a little stress for Anthony and I because they must be treated or they are fatal. A draining procedure can be done normally but typically not in Crohn’s patients, as they generally do not heal properly and often develop fistulas or perforations. Bowel re-segmentation (a removal of the effected areas of the colon) are often the recommendation. We were afraid we were heading into major surgery territory where I’d have to get worse before I could get better.
So, hooray for no abscesses and nurses who should have kept their big mouths shut! They were super nice and have no reason to lie, so I’m wondering if they looked at the wrong chart and some poor schmuck out there is walking around with my abscesses. Bummer, dude!
I do not have abscesses of course, but I do have problems. Lots of problems. The kind of beauty I have is not on the inside. It’s so odd because my GI specialist recently made the move to sharing offices with a plastic surgeon, so when you check in you are asked if you need the services of a plastic surgeon or a GI specialist. I told Anthony that when we checked in I should tell them that I’m only beautiful on the outside, and I need a doctor to help with my inner beauty. My biopsies came back negative for cancer (YAY) but off the charts for Crohn’s activity. Which, I mean, we knew, but now we know specifically, in a way that’s backed by science and data and not Gabby Gums, Butt RN. My treatment will be a few rounds with a steroid called Prednisone, followed by a new injection regimen I will administer to myself at home. From there we will touch base again to update treatment.
You may have heard about the terrible side effects relating to long-term (or even short-term) use of this drug. Steroids no joke and can adversely affect personalities, making one susceptible to aggression and fits of rage. Fortunately, due to my previous funtimes experience with hives, we know that rage hasn’t been an issue for me. Steroids mostly make me weird. Er. Weirder. I don’t really mind and my family generally finds it entertaining.
The best news is right now, at this juncture, I do not need surgery. It is a constant thought, faintly looming in the horizon, flickering in and out with possibility, but not something I need to worry about at the present moment. Which is a gift.